Doctors told me my son has a cyst on his spine: Advice?

My doctor just told me my son has a cyst on his spine. I am 21 weeks pregnant. Has anyone had this happened? Was everything okay? What should I do?

26 Likes

My daughter had a cyst in her bile duct, she was born and the cyst disappeared. Donā€™t worry mummy everything will be fine.

2 Likes

Listen to your dr. Dont panic. They will advise or get second opinion. Try to stay calm. For the good of the baby.

1 Like

My daughter had this too. The Drā€™s kept a very close eye on it lots of extra ultrasounds. It ended up going away before I gave birth to her.

2 Likes

My son had a cyst somewhere in his abdomen, they gave me more ultrasound appointments then usual to keep an eye on it but by the time he was born it was gone.

Both mine had one on their heads. Listen to your doctor. They will keep an eye on it, most cysts usually go away before birth.

Did he say where the cyst was or if he was going to do more tests??? It could indicate a variety of things depending on where it is and stuff. How worried did he seem???

They definitely should have given you more information. I know sometimes babies ā€œgrow out of cystsā€ on certain parts of their bodiesā€¦ theyā€™ll likely monitor you but you should definitely follow up with your doctor and ask more questions!

4 Likes

No offense to anyone here, but your experience has no bearing. Every case is so completely different. Every diagnosis, prognosis, outcome, complication will vary. So, the OP should truly be more concerned with what professionals say. Or just ask for support and understanding which Iā€™m sure we would provide.

19 Likes

When I was pregnant with my now 5 year old she had a cyst in her brain that dissolved before she was born. They will monitor it throughout and definitely ask lots of questions.

1 Like

Let this poor mama just ask for some advice geezā€¦all the ask this person, no one is the same, ask your doctor stuff might be true but maybe she just needs something to give her some hope or someone elseā€™s experience to make her feel not so alone and scared. You got this mama sending you great vibesā€‹:heart::blue_heart:

3 Likes

My doctor told me my sonā€™s spine wasnā€™t connected. I went to ultrasound after ultrasound. Specialist all over. They scared me, my son came out perfectly fine. When he was born of course they checked him alot but he was fine. Do not stress to much, if you stress the baby will too. Relax, breath and go to any and all appointments necessary.

7 Likes

Iā€™m 26. In my moms ultrasound (18 weeks) they had seen a cyst on my brain. By the time she hit 35 weeks it was gone. And Iā€™m healthy as can be. It sounds scary but just monitor it and keep asking questions! Iā€™m wishing you all the best!!

1 Like

when i was 7mths pregnant my son was diagnosed with heart tumors I was told my son wasnā€™t gonna make it but I thank god he is here he is 11 yrs only we saw a Cardolgist when he was 3 his heart tumors were gone prayer comes along way he was diagnosed with tuberous sclerosis complex which cause them he has one in each kidney and in his brain he had a biopsy everytime I went to the dr i was so scared but til this day hea been well the drs could not belive the ultrasound from his heart we thought it was dwn stay strong i know its hard going throw it while pregnant but at times drs can be wrong keeping u and the baby in my prayers i wish I had pictures to show u.

1 Like

My daughter had a cyst on her brain that disolved by 30 weeks. Prayers the same for you. Wouldnā€™t not worry unless they seemed worried. My daughter is perfectly fine. 3 years old now and smart as can be!

Did he say where? Is it the tailbone area? They told me the same about my daughter. Had to go to a specialist who said there was no threat and no need to remove. I was really scared too. But sheā€™s almost 2 and no problems.

1 Like

I have not read comments, but just please ask for a specialist and keep talking to doctors until you have answers!!! I have not dealt with it in an unborn baby, but my sister who was 26 at the time was told that she had one and the doctors did surgery that as it turns out was not needed and ultimately she died at 27 after having surgery because of a mishapā€¦ PLEASE DONā€™T LISTEN TO ANYONE EXCEPT A DOCTOR AND DONT LISTEN UNTIL YOU HAVE AT LEAST 3 DIFFERENT OPINIONS!!! ask as many questions as possible. I am 36 and have had 5 spinal surgeries and need anotherā€¦ DONT DO ANYTHING UNTIL YOU HAVE MULTIPLE DOCTORS SAYING THE SAME THING!!! best wishes love

6 Likes

Yeah, I would probably ask a lot of neurologists rather than random people whoā€™s medical degrees come from Wikipedia and webmd

9 Likes

I donā€™t have any advice Iā€™m sorry but guys she is obviously talking to the doctors sheā€™s asking for experiences and advice

7 Likes

Most cysts are benign. Once the baby is here, everything will either be fine, or promptly fixed.

She isnā€™t just asking ā€œfacebook doctorsā€, sheā€™s also asking if anyone had this happen and what the outcome was.

4 Likes

all these rude ass captain obvious comments pretty sure sheā€™s talking to doctors she just wants to hear about other moms going through this and what was the outcome

Please go call your doctor write all your questions down one by one and ask them calmly and collected. She:He will tell you what to expect. Asking these groups for medical advice is a bad idea.

12 Likes

Talk to your doctors. They are the professionals.

5 Likes

Google Mayo Clinic. The doctors site. God guide and protect you!

Pray :pray::pray::pray:
Iā€™m praying for you toošŸ’

Certainly FB is not the place to get advice!!! Talk to Dr.'sā€¦

Itā€™s best to ask the medical professional- not a FB group

1 Like

Yeah all these posts about talking to the professionals is a given. But you asked what you should doā€¦breathe, rest and pray(or whatever calms you)ā€¦then write down worrys, concerns and questions to ask the docs. Join groups with people that have been thru this beforeā€¦ and hang in there!

If they havenā€™t sent u to perinatologist or Maternal Fetal Medicine then that is the first step. They will be able to give u more detailed lnfo

Give it to God, pray about it. Carry your baby to term. God can heal your baby.

4 Likes

Talk to the doctors instead of Facebook.

1 Like

My son had four on his brain; plexus choroid cysts and they rĆ©absorbes by his 32wk appointment. They had told me it was a marker for trisomy, and to prepare myself for Max two days of life if I carried him to term. Do your research, ask the hard questions, ask your drs and if you donā€™t like the answers get a second opinion.

2 Likes

I was told it was unlikely my son would make it to termā€¦IF he managed to live, he would be SEVERELY mentally disabledšŸ˜¢
I CHOSE to go with having him regardless. He was born 2 lbs, 8 oz spent a few months in the Nicu. I never gave up on him, visited EVERY DAY, usually 2 times a day or more, slept there many nights.:cry:
NOW, celebrated his 8th Birthday last week, and a real life projected genius.
You got this momma! Hugs

1 Like

Get a second opinion. Always. With any medical issue. Maybe with a pediatric cancer specialist just to calm yourself. My daughter is currently 18 weeks pregnant and that is what my advice would be to her. Especially with COVID. Also try to find a ā€œmommy/pregnancy blogā€ and ask if anyone in those groups had a similar experience. I have heard most babies absorb them but again, personally Iā€™d want my daughter to get a second opinion. Best of luck to you and the baby.

1 Like

Get of Facebook and ask a real doctor :woman_facepalming: you will just stress urself out asking on here and getting mixed comments back

3 Likes

Karamyn Pluto Christine Fraser