I was told my baby may have down syndrome

I recently been told that my 7 months old baby boy who is the most happiest cutest baby in the world, may have Down syndrome, he seams to have all the signs of mosaic syndrome is there any mums who have advice? As what interests, food, behaviour, groups, sensory anything that may be helpful as I am very clueless to this

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Help a mama out and respond anonymously on our forum. I was told my baby may have down syndrome

Usually can tell by looks. But if he’s happy keep doing what your doing seems to be working

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Don’t give up on your baby.

I have a son with DS and he is wonderful just a little behind on things.

Look for FB support group.

Down syndrome kiddos r individuals too so it’s gonna be based on their interests. I know some that absolutely adore Lego’s and such. Foods and stuff may just depend on what u teach him early on unless he has health issues with Downs. Nose usually plays a factor for the sensory so noise canceling headphones r good to have around. U can get with u state/county and see if there are any groups and such for special needs kiddos in ur area. My youngest is autistic but I have 7 yrs experience with special needs in school setting. Maybe this helps a little!

Not a mom but sending you (((HUGS)))

No matter what, he’s still perfect in every single way. Having a child with special needs is just dedicating yourself to making adjustments so they thrive and are happy. Research is your friend

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If it was the Dr office telling you then they likely can give you more information on what to expect such as possible developmental delays or other sometimes related health conditions they might have to test for and the Dr office can give you referrals to any related services the child may need like therapists or cardiologists etc. Typically babies with DS can eat all the same foods as children without DS unless they have allergies to specific things. There are feeding therapists that can help if your baby has trouble learning to eat solids.

I care for someone with DS and just found different fb groups. Needs will change as they age but there’s really no limit for some as to what they can do!!

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I’d wait for an actual diagnosis. I was pregnant with my son when they told me he would be born with down syndrome. So I fully prepared myself to care for a special needs child. My son was born without down syndrome and was perfectly happy and healthy.

It’s not a bad idea to do a little research on it but don’t dive in head first until you’re completely sure.

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Usually you can tell by looks. I’m not a mother of a child with down syndrome but my 4th child has severe autism and is the happiest kid ever. But having a child with a disability isn’t for the faint of heart, it takes a lot of patience and self discipline from ourselves. The older they get, the harder it becomes, especially if they cannot communicate. My advice is just get your child the developmental help that he needs. You’ll need referrals through your childs dr. Tell them what you want for you son. The sooner, the better. If your child has medicaid, it can be a very long process.

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I would look into a child development specialist and possibly early invention.

Only very, very special moms get a downsindrome kid. You are immensely blessed

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I can say that you have the best blessing that you could ever receive from God above.Babies and adults with down syndrome are God’s chosen people.WHAT A BLESSING YOU HAVE!!!

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Babies with down syndrome love music! They also never know when they are full,so please don’t over feed.They are slow in milestones such as crawling and walking.Enjoy each moment,it’s only going to get better.Sign language is a great thing to teach early for communication skills. They never forget as well as over come task when you least expect it.Dont stress mom,your just blessed…

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Chromosomal karyotype test. Have your Dr order this. God Bless y’all

Definitely ask for a early interventionist to come out to your house for a evaluation! You should be able to contact your local health department and ask them for a meeting or get a referral from your doctor! Early intervention is great for developmental delays and helping you get into specialist and they’re great with setting goals for your growing baby.

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why wasnt he diagnosed in hospital, it shows in the blood work???

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I would contact your doctor. Your doctor would be able to put you in touch with child development specialists in your area who can advise you on ways to keep your baby stimulated, what foods are helpful and which to avoid, and other things to help. There are probably parent information groups and support groups in your area. I would think that your doctor would know how to access these resources as well. Best wishes.

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So did any of the tests during pregnancy indicate this? How did they not catch this in the first few months of their life?

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The only way you know if your child has Down syndrome is by Doctor telling you this. No one knows this on Facebook.

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It seems they would of realized that at birth
Not only with features but lab work as well

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Treat them with expectations you would have for any other child. These individuals can live very productive lives

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They thought my Daughter had downs but it turned out to be Noonan syndrome. Knew nothing before birth.

My son has DS - regular trisomy 21. To test for Mosaic, they need to test a larger sample of cells in order to see which percentage of cells have the extra chromosome. Sometimes it’s not beneficial to get a mosaic diagnosis and instead to accept a trisomy 21 diagnosis because SSI may require more proof of disability in order to qualify since people with mosaicism can be less affected. That being said, people with mosaic can have just as many health issues and cognitive delays because it all depends on how the extra chromosome interacts with specific genes. First, get the karotype blood test. Then, get a referral for early intervention services. Go ahead and join a DS moms group for the most helpful information. (Possibly) welcome to the family of the Lucky Few!

Hi feel free to PM me :slightly_smiling_face: My Daughter’s name is Piper and she just so happens to have Mosaic Down syndrome :smiling_face_with_three_hearts: