We were told our unborn baby has a life threatening birth defect: What would you do?

Why would you wanna terminate at 19 weeks, so late it’s already a formed baby.

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I was told my daughter had severe spina bifida and we choice to have her and she was born 100 percent healthy, I followed my gut and I’m so glad I did :blush:

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Find another doctor that is not into scaremongering :woman_facepalming: it’s not rare and it’s fixable!

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I’ve heard of this before and everything turned out perfectly fine for the most part

Find a new doctor, period.

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Totally normal. They’ll do surgery to fix it.

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Oh and you need a new doctor I would advise you to get one ASAP!

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This is more common than you think. I’d say seek a different doctor who has more knowledge in this than yours. Good luck mama

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My daughter had this and I was also told to terminate. She turns 20 this year with no complications. 3 months in the NICU but she was totally fine after.

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Is it called Gastroschisis? If so, my daughter was BORN WITH THAT CONDITION. Contact me if you need support.

I would ask to see a specialist

If they can help a baby with their heart growing on the outside I’m pretty sure they would be able to help him and educate them at the same time good luck :heart::heart::heart:

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Always get a second opinion when it comes to this sort of thing and get as much info as you can! I’ve personally known a momma who was told her baby wouldn’t make it a day after birth so they were told to think about termination or go through with it. They went through with the pregnancy and their baby is two years old now. Things can take a drastic turn from what the docs say.

I would terminate. But after getting another doctor’s opinion. Good luck to u!

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Never give up on anyone!! :+1:

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I assume you mean Gastroschisis or omphalocel. Mom and baby need monitoring and baby should be born via c section at 32 weeks and no later. Mom should have no weekly appts with ultrasound to measure the bowels and baby for growth. Please don’t terminate this pregnancy babies have this more often than you think and can live perfectly fine. Baby will need surgery to put the bowels back in after birth.

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YOU DO WHAT’S BEST FOR YOU AND YOUR FAMILY. No matter what any negative comment on Facebook says

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If your doctors are telling you they don’t know much about this condition then RUN because it’s actually pretty common and in no way shape or form a reason to terminate. Yes the baby will have surgery and a NICU stay but it shouldn’t have life long issues from it.

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Sounds like GASTROSCHISIS, and its is CURABLE! My friend has two daughters and they both had it, they are now 4,& 5 years old! Keep the baby!

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Get a second opinion please. This happens more than you think and i think ur baby would have a good chance at life.

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My daughter has this!!! They told us to abort, she’s 7 and perfectly healthy!!!

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Get an actual name for the defect and get a second opinion. Find a doc who knows what they’re doing. Hurry though, 19 weeks is getting late.
Only you can decide if you want to carry to term. Don’t do it because of outside pressure though. That’s up to you. You can terminate if caring for a child with potential lifelong issues isn’t something you feel you can do

Look for a new doctor. It sounds like many who have answered know someone with the condition and they have all been just fine.

I would terminate if I was concerned about quality of life, but this seems like it can be treated and be a non issue… so I would seek a dr who has experience with it and get their opinion.

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That is fixable. So many babies are born with this defect… find a new doctor

This is your child. Love them with all you have. Life is precious and a gift, dont throw away your child’s chances

I wouldn’t get an abortion if I were you i know 2 people who were born that way and they are perfectly healthy

My cousin had a child with this condition a few years ago. I promise it is not as big of a crisis as you think it is. He can go on to have a perfectly normal life and this will just be a bump in the road.

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They should be referring you to a specialist!

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Angela Rivas this is what Mia had right?

Termination would never have crossed my mind. We would do whatever we needed to.

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Me and my husband have discussed this… it would be the hardest decision of our life, but we would choose to terminate.

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Definitely find a new doctor ! My cousin is 38 years old he was born with his bladder on the outside of his body he had many surgeries but he is a perfectly healthy functioning adult who works full time with no issues at all he’s actually living an amazing life he has traveled the world and much more ! He was born at children’s hospital of Philadelphia and that was 38 years ago you definitely need to see a different doctor and research other specialist ! He even played football in high school and college I know there was so much more to it and like I stated above he did have to go through his fair share amount of surgeries but it was worth it! Plus he got to be here for the birds first super bowl :eagle::eagle::eagle:

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Once born ur baby will c a specialist they will decide treatment this can be fixed I wouldn’t abort that just my opinion ur call tho

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my friend had a daughter born with her intestines were on the outside shes 43 years old now and doing fine the only thing is she couldnt have kids

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Keep the baby! :heart: find a different doctor who knows more

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My grandson had this he is going on 9 years old and has no issues

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This is more of a common issue.
Find a new doctor for a second opinion. Yes there is surgery and recovery but it shouldn’t be a life long disability unless there is more they’re not telling you.

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One of the girls I went to school with went through this, her baby boy is perfectly fine and healthy! Get a second opinion!

My brother in law was born with his organs out. He is healthy and played football in high school. You can always get a second opinion. But I would want to know why they think your babies is so rare when it seems to be something that has happened to others and they go in to lead healthy and happy lives.

Your child and ultimately it will be up to you as parents. Hoping that you receive nothing but support either way and sending nothing but love to you in this difficult decision <3

The way I look at this is carry baby to term give it a fighting chance, I personally do this

My friend had that - girl is fine, happy and healthy with one surgery immediately after birth.

Don’t panic. Its corrected with surgery. TJ Oshie - Washinnton Capitals-Pro hockey, first born child had this, surgery corrected it.

I agree with pretty much everyone else. Get a diagnosis and get a 2nd opinion. I’m pro-choice and would not abort for this. I’d request to be referred to a specialist so we could formulate a plan going forward.

I have an adult friend that was born with this. Can’t believe the drs can’t be more helpful answering your questions. Second and third opinions needed.

I always say God works miracles! Give the baby a chance to prove the doctors wrong.

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I have a beautiful, healthy daughter that had this defect. It is gastroschisis. I also had 2 cousins that had this birth defect. They are all healthy adults now.

I hope this helps you in some way when I was pregnant with my son I had a test done and the results of that were positive for Down syndrome and spinal bifida the doctor told my husband and I to abort the pregnancy I had so many things going my head I look at my husband and side what are we going to do he literally sat me down and took my hand and said god gave us a gift and we are going to give him the best life ever thank god for my husband because our son was born healthy and perfect can you imagine if we would have listened to the doctors there not always right

Its Gastroschisis!! Absolutely ZERO need to terminate!! A couple of surgery’s. No kind of quality of living is lost. This is absolutely survivable!

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I know someone who was born like this and she is now a happy healthy 20 year old in college. It never slowed her down in life.

Praying for you an that baby boy God bless his lil heart :pray:

Why must the option be to abort? If the child has a major problem when its born and you’re not willing or want to deal with it I’m sure someone else that can not have children would still be willing to adopt.

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Those doctors may not know much about it that’s why they are telling you what they are telling you but you need to get more opinions from different drs before deciding to end the pregnancy. I really hope everything turns out fine but please get different opinions first. This is hard for your family I know but don’t give up on your baby just because of what this Dr says

My cousin had this. She’s fine. She had surgery to put everything back in place and she lives a normal life now.

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Get a second and third opinion!! Research online for support groups and see how others have fared.

I think you need to find a new doctor. And get another opinion. This is definitely something that is ‘fixable’, as many are actually born with this.

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My nephew was born with his intestines on the outside. He was in nicu for about two months. He will be 9 tomorrow and doesn’t have any major issues!

If my baby had any chance at survival I’d give it to him. The birth defect isn’t as uncommon as you think. Do your research maybe even find a new doctor/ get a 2nd opinion :heart: prayers for whatever you decide to do momma. No decision will be easy.

My best friends son was born this way, he just had his 8 th birthday!! It can be fixed with no problems for the rest of his life. Do what you feel is right but please look into all the success stories. ALSO if you choose to move forward get a different Dr. since your current one has stated he doesn’t know much. There are Drs that have seen this and know how to handle it.

Gastroschisis? My daughter had that and only a tiny portion of her intestines were outside. She is completely healthy today, she just doesnt have a belly button. That is her incision site.

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Absolutely would not, could not ever voluntarily terminate a pregnancy. Especially when it’s not even a definitive diagnosis that’s going to have long lasting effects. But, that’s just me.

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I know of a girl whos baby had the same thing. The baby had surgeries. And is now a healthy and thriving 5 year old girl! Do the surgery. Pls

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This is a very personal decision that you need to make, you also don’t need strangers on the internet guilting you into a decision one way or another. They’re not the ones in the position, they’re not the ones that will have to watch their baby go through possibly painful surgeries, only you can answer for yourself if you’re emotionally and financially prepared to do that.
Take into consideration if you already have kids and your situation.
Personally, I think I would terminate. I can’t say with certainty as I’ve never been faced with it but that’s what my logical side thinks. I have two kids, one with a disability. I couldn’t be there for the unborn child going through surgeries and possibly having lifelong issues, as well as be there for my living children, it wouldn’t be fair to any of them.
Also not helpful is people saying my sister’s brother aunt had that and they’re fiiiiine. That’s great for them, but we don’t know the specifics, we can’t say it will be fine.
I’m sorry you have to make this choice, I couldn’t imagine being in that position and I’m sorry there’s some people trying to guilt you one way or another.

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Sounds like gastroschisis and my niece was perfectly fine no repeated surgeries and a high risk ob monitored my sister 2x a week with ultrasounds to see if a csection would be needed…shes almost 13

I’ve seen plenty of stories where parents were told their baby would have some life altering defect, then the baby is born perfectly healthy. Not saying that will happen, but the medical world is so amazing with the technology we have, surgery will fix the issues. Keep your baby. Just think, what if the doctors didn’t see this during pregnancy, and they realized it after birth. What would you do then? Kill the baby? That’s what abortion is. Don’t kill your child.

My dad was born in Italy with all of his organs on the outside of his body due to a hole in his abdomen, he is now 55 years old and the only issue he has is that he has no belly button and when something is “acting up” they have to due an MRI to find which organ it is because they aren’t placed exactly where they should be in the body. I would research doctors who specialize in such issues before you make the decision to terminate, it doesn’t seem to be as rare as they are making it out to be.

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This is absolutely survivable! Not life threatening . I know many many people children who have had it and surgeries !! They are FINE!!

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I would follow through with the pregnancy.

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Lacey Hatten I thought you might be able to give her some advice!

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That’s way more common than you think- also I’m going to add that just because they say your baby will be born with a birth defeat doesn’t mean that he will be. With my daughter we were told she would have a heart defeat and she was born perfectly fine. I would give the baby a fighting chance- god works miracles

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This is gastroschisis. No reason to terminate.

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While I would not terminate just because I don’t think I could go through with it (even though I 100% support women’s choice in the matter), this is YOUR choice. You and your SO have the choice and it should not be influenced by strangers on a FB group that say “ trust god” or “its murder”. It is NOT murder. This baby can not survive outside of you. This baby could cause you and your family emotional and financial struggles for your whole lives. And while yes, any baby could do that, you know that this baby has a defect that will cause you and the baby pain when it is born. Research the defect online. Ask questions to your Dr. if you have any. Do not decide based on what these people are saying. Do not feel guilty if you decide to terminate. You will make the best decision based off your own family situation.

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He is already 19 weeks old! You are half way through pregnancy… That’s your baby. Don’t end his life cause you are unsure.

Go ahead and hate me

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It’s fixable through surgery.

A little girl I went to church with had this when she was born and just celebrated her 10th birthday.

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Drs can be worng. I personally feel, if theres a heart beat, theres hope. You need to find a dr who knows about this defect, and can give you all the answers you need. Could you honestly be okay with stopping his heart? Or is it worth the shot to see him run and play? I wish you the best mommy. I cant begin to understand how hard this is. Just please, explore all opportunities before deciding :blue_heart:

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Go to another dr get 2nd, 3rd opinions until you find a dr that will have a solution. Prayers for you and your family.

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So what if the baby is just fine?? How would you know if you kill him? You wouldn’t. Could you live with not knowing and knowing what you did without actually knowing anything?! :cry:

I have a cousin who was born with a major birth defect where her skull didn’t close correctly. She had half of her brain removed due to the damage, and they were told that she wouldn’t live the night, then the week, and then it was she’ll never walk or talk. She is now in her 30s with a son of her own. She does have some issues, but she walks everywhere, she talks just fine, and she graduated high school. So don’t let the doctors scare you off, anything is possible if you are committed to it.

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I have a friend whose son was born with this issue. He did have surgery when he was an infant. He is 20 now and doing well.
I was born with a congenital defect. I am an intelligent woman, went to college, married, raised children, have grandkids. If you have doubts, just remember God makes each of us unique, your baby may or may not have a problem. He may become the biggest joy in your life. God bless you

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i havnt read any comments. im just here to tell you that a friend of mines son was born with his intestines and such on the outside of his stomach, and they had to slowly put them back into him. he is now a very happy and healthy 2 year old boy! i believe he stayed in the hospital for less then 2 months! no life long effects :heart:

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My cousin and a friend of mines child was born like that. They are normal happy kids now. Yes they will go thru surgery but they can make it. Id get more than one opinion and have some faith.

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I was told my daughter would need brain surgery the moment she came out of me and she is now 2 years old and perfect. She never needed surgery and they were wrong don’t give up on your baby pray everyday and keep your taith

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Don’t terminate!! My son was born with his intestines outside of his body, it took some time to find a proper formula for him and took some time for him to be able to eat. But he’s a beautiful baby who is full of life. He has completed my fiances and my life. He is amazing, give your boy a chance :blue_heart::blue_heart:

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Jennifer Bee know anything about this, nurse friend?

Your sweet baby is fearfully and wonderfully made and perfect in the image of God, with or without the defect. :heart::heart:
I am praying for you to have peace and confidence in the health of your baby boy! God has a plan. Seek him and he will give you rest.
Exodus 14:14

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Keep the baby. He deserves a chance at life. You don’t know the outcome until he’s here, and for all you know he could live a totally normal life. Pray about it, and let God lead you. I personally could never end a pregnancy. I have 3 kids of my own. Best wishes to you.

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Do some research find another doctor … there is a doctor who knows about this somewhere I assure you. I’ve heard about this and most of the babies lived normal happy lives . I’m very pro choice. Your life isn’t in the balance here and more than likely neither is your baby’s… just find the right doctor. They should be referring you to a specialist. If they haven’t mentioned that then YOU need to and YOU need to stand your ground. But in the end it is your decision to make. Only you know what is the right choice for you and your baby. That’s no one else’s decision to make. And anyone giving you grief and judgment over asking needs to go sit down somewhere else. Praying for you momma and your baby !

Baby will be ok seen it 30, 12 years ago and 6 months ago l. Big difference now. None has issued after. All greedy butts even baby is greedy. That’s a good thing. Trust God. Baby will be ok

That is no reason to terminate. It is a reason to get a new doctor though.

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I would keep the baby, with my first born they told us she would have down sydrome, heart problems and a bunch of other stuff, she was born early at 33weeks with absolutely nothing wrong!

My mom was pregnant with twins, they unfortunately didn’t make it but the one has a similar thing where his. Organs alll grew outside of his body, I could be wrong (I was in middle school when this happened) but if he would of made it i believe they would of did surgery to put it all back in place.

I hope all is well for you :heart:

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I’ve taken care of an infant that was born that way, right after birth. The infant was shipped to another hospital for surgery & recovery. I was “learning” Neonatal nursing in a top notch hospital back in 1983. They had a child with the same issue. That was well over 37 years ago. Get opinions from level 4 NICU hospitals in the area. Yes, this will require surgery, but, it is only a surgical defect. Imagine the miracles that have happened in the last 37 years. There are neonatologists, neonatal surgeons & specialized hospitals & units. Go find the REAL answers there. You may need to deliver(C-Section) in that hospital so that he/she has immediate care. Good luck!

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Get a 2nd opinion and like many others have said do research - as long as your child is growing and thriving inside of you with only this issue then give him the chance to grow and thrive on the outside of you - drs. who don’t specialize in these types of issues tend to scare the life out the parents and pressure them sometimes when it isn’t necessary to do things they truly don’t want to do. Your dr. may not know what to do but there is a dr. I’m sure in your area that does know about this condition. The choice is ultimately yours and your husband’s to make but I truly hope you ask for God’s guidance before making a decision on the life or death of your unborn child. Prayers.

The dr can be wrong. I would go through with the pregnancy.

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When you get pregnant and you have a baby you take on whatever challenges that precious baby needs. He doesnt deserve to be murdered because hes not perfect.

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That is something that can absolutely be fixed & is more common than you know. Hugs mama

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I’d rather birth a baby and know I did everything I can as a mother and lose him/her than terminate the pregnancy and wonder what could have happened. I should also add I’m Prolife, so terminating a pregnancy is not okay no matter the chances

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My brother in laws sister had a pregnancy sounding exactly like this where the intestines were on the outside of the babies body. They perfomed one surgery and she is a happy healthy beautiful baby with no issues.
I would not terminate. That baby is almost at the point of survival out side the womb if born. Its not like your 1st trimester.

Thats your child and you will love and care for he/she no matter what!

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Granddaughter had the same problem. She is now 20 and pregnant with her first baby.

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First of all, I’m so sorry things are going this way and it’s such a shock when we find out something could be wrong with our babies. I really hope you find peace in your decision, whichever you choose. Personally, I wouldn’t terminate if the baby could be compatible with life. There is an Instagram account of a mom with a little boy who was born with this and he is definitely having a rough time and it’s pretty heartbreaking but every case could possibly be different. Best of luck to you!