Help a mama out and respond anonymously on our forum. Have any mommas out there had their baby come home out of NICU with a NG tube?
I would call hospital and ask for a nurse to assist and come in couple times a week to help you.
Hon if your SO is giving you the minimum, then he isn’t “trying.” Do not accept low standards from him, it will not get better in time if you do. He needs to help you out as much as he can so you don’t burn yourself out. If you have the funds to do so, I encourage you to outsource as much of your chores as you can. Pay for the help, or see if family and friends can assist. You may be able to get your health insurance to pay for nursing care as well.
Depending on your state - if the child is on Medicaid, you may qualify for nursing hours - esp if on meds and has a health condition that’s considered “medically fragile” DSCC manages these kids in my state.
Oh mama I was there once with my daughter. It was a struggle for 9 months of her life after the NICU. I pumped breast milk for 4 of those months and it was brutal. Feel free to message me. If I could go back and tell myself one thing it would be that typical babies don’t eat like that around the clock. It’s OK to leave out a feed in the night occasionally as long as baby is sleeping and gaining weight LET HER SLEEP. and get some sleep for yourself. I’m sending you so much love. Also this is only a short phase and seeing last forever. Try to enjoy it because as crazy as it sounds you will miss it. Also put the feed supplies in the fridge after night feedings to save yourself time on cleaning.
Regarding your SO, be specific in what you need him to help with. Oftentimes, dads aren’t certain of their roles and how they can best help. I’m sure this is an adjustment for him, too, so be patient. No matter the circumstances, all babies are work. You were designed to meet these challenges. 
Hang tough prioritize what actually had to be done… so sweat the small stuff. And take it one min at time…
My 12 year old still has a feeding tube and eats every 2 hours. It won’t be easy, especially at first but you’ll slowly start to get into a routine that works for you. Take naps right after you’re done with the feed. If dad or someone else is in the picture, ask if they can run the machine for a feed or two so you can sleep. Take some time to breathe. When you’re running a feed have your SO watch her so you can shower. Sometimes it’s harder for men to jump into helping the way moms do because they’re scared of hurting the baby, it’s scarier for them with added pieces but continue trying him to do a little more each time.
We typically send home with scheduled feedings during the day, but over 8 or 10 hours at night. I would see if your doc would consider that.
U would be feeding a newborn every few hours normally . This is how it goes having a newborn no time for anything else . My daughter had a gtube and I could hook the feeds up and do other things the machine runs itself I would just keep checking as I was cleaning . Over night I would stay up after a bit we didn’t do feeds over night after she started gaining weight . If u really need help I would inquire about a nurse a few hours a week
Hang in there mama! Just know you’re doing the absolute best job taking care of your baby. Don’t be afraid to ask for help…whether it’s from your hubby or outside nursing help. Sending love and prayers for you and your sweet baby 
My baby came home on a NG tube for 12 weeks. We eventually switched to a peg. Overnight feeds didn’t work for her. It’s very hard to find a routine but eventually you will find yourself loading up the pump and doing all the normal things you need to do. I eventually started hanging the feed bag from her car seat while she ate and did my grocery shopping with her right in the cart. You’ll find your “new normal”. It was for my experience not having much help because people including my SO was afraid to hurt her or mess the pump up. It is very hard at first and please feel free to message me if you ever want someone to talk too.
Me I did I get you it’s hard work expressing breast milk then putting in the tube then sorting my 2 year olds aswell . We are currently back in hospital and she’s 10 months old xx
I had very premature baby who came home with a gtube and an IV. There was no sleep, maybe 3 hours in a day for roughly 2 years. Gtube was the same, and the IV bags ran over a course of 24 hours, I had to get the bag out of the fridge 2 hours prior to changing it. She also had an antibiotic that ran thru her IV and that was a few times a day, and those had to be pulled out of the fridge an hour prior. Every single thing had its own package, I had to put together a dozen pieces each time I set up a new IV bag. She had 5 different types of therapy each week, she had appts all over the place, one was 1.5hrs away and that was weekly. Plus I worked full time, and was a single mom. It’s hard but you just do it.
I’m reading all these comments and so happy for all mothers who are doing greats job. My niece’s loss her premature 31 weeks a beautiful little angel.
Drs told us baby would have being on Gtube feeding .
I don’t know what state you are in. But I would have more than happy to help and volunteer my times do cleaning and do your errands while you are taking care for you baby and get some rest.
I live in the Bay Area
Sending
Do you maybe have a family member or close friend or maybe even a church member that may be able to help you out for a few hours? You definitely can do this but you don’t have to do it all on your own. When my son was premature I was super lucky in getting help with meals, cleaning, and occasionally having them do a feed or two and letting me shower and sleep. Definitely praying for you!
Chin up you are doing awesome. Like any mama you are tired, and frustrated. You are going to get through this. Great big hugs of encouragement.
Look into getting help through a home health care or respite care, sometimes insurance will pay even 4 hours a day will give you the opportunity to sleep, shower, run errands. Ask other family members for help. Getting help does not make you a failure.
Tubie momma here. It’s rough but it gets easier! I’m here if you want to talk!
When my son was that young, we did continuous at a small amount overnight. Can you not do that?
You need to be direct with your husband
Check with your insurance. You should be receiving private Duty nursing
Check with your insurance company. They may be able to provide a nurse or resources to help.
Oh and use a lot of baby powder 
it’s what I do. I get the off brand baby powder in the health and beauty section and it helps soak up the pee and runny poops when she has them
It’s not just you.
It’s any NICU baby
They need to eat every two hours
They don’t TYPICALLY send home babies with NG tunes.
My son is almost. A year old NICU baby and he still gets up a few times a night to eat.
Hire a nurse for at night to help.
But all my nicu mama’s and myself survived. You will too.
Your husband needs to help more. You are both parents and both need to help each other.
We don’t have the tube but are feeding every 3 hours at least and it takes him about an hour. Forever to burp. He’s 3months old now and is hungrier but can’t handle more in one feeding so it’s actually more often now. it’s not exactly getting easier but we are getting more used to the routine. It does feel like there will be a light at the end of the tunnel eventually good luck to you on your journey
Hang in there. It won’t last forever.
I manually fed my daughter threw her NG tube and pumped. It was horrific and painful and tiring. I didn’t sleep it was hard to clean. I had a toddler I had to be there effort too. Your not failing, you are supermum even if it doesn’t feel like it right now. Ask those around you for help. Just hand in there!
It’s okay you’re feeling this way. Ask family or friends for help during the day or night to get in a shower, laundry or dishes. Maybe ask for some help with cleaning services. I won’t be forever, and okay to need support. Make a chart to set up arrangements. State aid? Might be an option
As others have said, most newborns are fed every three hours.
Can you find out if your baby can be fed at a slower drip for longer periods of time if that would help?
You will get through this. It’s a long hard journey with a NICU baby and what you’re feeling is perfectly normal. You’re doing a great job mumma. Reach out for extra support if you need it
Hang in there and just know this is temporary 
Premature Babies and NICU
I had nicu baby that had to eat every 3 hours, had to wake her if she was sleeping, and she didn’t take to breastfeeding so I had to pump and then feed her. It was extremely overwhelming but it gets better before you know it. Your husband really needs to help, even if only 1-2 feedings to allow you to shower and sleep. If your house gets messy seriously don’t stress. And don’t be afraid to ask family for help.
If she eats every 3 hours and the machine runs for 1, then you have 2 hours in between to get stuff done
Love to you
50 years ago, long before NICUs my oldest was a preemie. I had to feed him every two hours with an eyedropper. I remember being so tired I once fell asleep while standing up. Your child will get onto a better schedule, it just takes time. See if your area has a visiting nurse program or some other help somthat you can get a few hours sleep. Call her doctores office or your local health department. My son ended up,being six feet tall, but there was a lot of exhaustion before then.
This is my post, thank you everyone for your kind words and advice. She was in the NICU for her intestines being out of her body and 2 heart defects. Here in a few months she will need to have surgery to close the holes in her heart.
As hard as it is now… take pleasure in knowing its not going to be forever 
enjoy your lil angel