My OB just called and told me my baby might have gastroschisis. Any other mamas have a baby born with gastroschisis, and how did it affect your pregnancy and delivery? What can I expect after delivery?
I have no advice on this, I just wanted to say I am praying for you and your baby!!
They’ll likely have to do a csection for baby’s safety, depending on the severity of the condition.
My kiddo was born with Gastroschisis almost 9 years ago. I also have connections to a nonprofit that is very helpful with Gastroschisis! Please pm me!
My grandson had it. My daughter moved from Florida to Portland,OR because she could deliver naturally there with a particular DR. My grandson was in the N.I.C.U. for awhile, he had several surgeries, but is a wonderful, healthy, and happy 4 yr old now.
My grandaughter had it. She was taken a month early. Then a solo (looked like large condom) was placed over her navel and the intestines went back inside. She spent a month in the NICU. Healthy and happy today!
My 10 year old had it. Had a csecion with him. Hes had 3 surgeries was in the NICU for a month and now he’s a happy "normal’ little boy with an awesome scar as he calls it
My daughter was born with it I was definitely worried but I was able to deliver naturally and they wisked her away to put her intestines in a silo she was like that for a couple months she did need physical therapy while and bit after she left but she healthy 10 year now with no issues.
My son was born with it. Had a c section but not because of that. He had 1 surgery and we were released in 21 days. To date he has had no complications. Be patient with baby when you get home. It took my baby man quite a few weeks before he felt comfortable after a feeding. Lots of walking the floor and sleepless nights.
My daughter had it. They found it at her 15 week scan. I was sent to Specialist for her. They did ultrasounds every week up until I was 20 weeks. When I 20 weeks we went in and a true Miracle. Her intestines had gone back inside her body. At 35 weeks they gave me one more ultrasound to make sure and I delivered at 39 weeks and 5 days. She came out 8 pounds and healthy. She’s two now and thriving
Found a good high risk OB at an amazing hospital. More frequent visits and ultrasounds quite often! Induced at 38 weeks and she was out of the hospital in a little over 2 weeks. She had the surgery to place the intestines back in a couple hours after giving birth. Every child is different they decide when they can have the surgery case by case. We have had no issues besides really bad gas issues as an infant but grew out of it as a toddler.
My daughter was born with it. Had lots of ultrasounds during my pregnancy overall my pregnancy and delivery were good no issues no complications I had her natural and she was gone right after birth into surgery she didnt need the silo as her abdominal wall was big enough to place it back in we spent 6 weeks in NICU. She is now 9 years old and is a happy healthy kid zero issues no complications.
I was born with it. I’m now 27 and I’m healthy. I spent a month in the hospital after I was born. The only thing that remains is the scar in place of my belly button. There’s surgeries that can fix this, but i decided to keep mine.
I was born with it. Science has come a LONG way since then. Baby will be just fine
My oldest daughter had it and was in the NICU for three months and wasn’t able to hold her the first month, but a nurse let me hold her for the first time on my birthday, was an emotional moment for me! She just turned two! She’s awesome, is like every other child, she just doesn’t have a belly button and it’s cute! We read the belly button book all the time! She’s my bundle of joy, and definitely a very strong girl
My son had gastroschisis. His didn’t close so he had to have surgery as soon as he was born. My pregnancy wasn’t complicated but I did have to have a c section because of how his intestines were all out. He was in the NICU for 4 weeks because my amniotic fluid was leaking so I had to have him at 32 weeks. Now he’s 5 and you could never tell anything happened. His surgeon made his belly button look real so he doesn’t even notice
You can PM me if you would like. I had a daughter with gastroschisis. I am open to answer any specific questions you might have. Pregnancy doesn’t change too much; more ultrasounds, appointments with your OB and then with a specialist. The delivery will be a scheduled C-section and the baby will have surgery immediately following birth.
A friend of mine had a son with this in 2007. He had 6ft of intestines on the outside of his body. They did a c-section and, took him immediately to surgery to slowly put them back inside his body. The process took about 3 weeks. He’s gonna be 13 this year and, he doesnt have a belly button but, he’s healthy.
My friend just recently had her baby girl with this. She had a c section. No crazy complications but wasn’t allowed to work once they found out she had it and had to take maternity leave early. Her daughter was in the Hospital for a few months but she had to have 5 surgeries. She’s not even a year yet and is completely off the bag, no more surgeries, and thriving
My 8 year old daughter was born with gastroschisis. Pregnancy will mostly stay the same. More ultrasounds and appointments. I had her vaginally. She had surgery immediately after birth and once more for closure. NICU stay was only a month. No complications since.
I’m an OB ultrasound tech and I can say that if you’re under 12 weeks it might just be a midgut herniation which resolves on its own. Otherwise it requires surgery if it’s gastroschisis. Pregnancy and delivery doesn’t change much but you’ll want to deliver somewhere that does the surgery.
I have an acquaintance her daughter was born with gastroschisis and she was born via c section and a couple weeks early she spent a few weeks in nicu had surgery and she is just as energetic as any toddler.
My husband had it when he was born. Lots of surgeries to fix it but his mom is fine she had to have a csection and he is fine as well besides IBS
I had gastroschisis when I was born. I am now 36 years old with 3 sons of my own. All born perfectly fine Just a little positivity. A lot has changed in the medical field since I was born in 1984.
My fiance’s daughter was born with gastroschisis. She just recently turned 6. She is a healthy, happy, very active little girl. She was delivered via c section. My in laws sometimes talk about how scary it was when she was in the NICU but she made it out great.
My daughter was born with gastroschisis 14 years ago. My labour was induced at 37 weeks as she had to be born in Manchester but labour and natural delivery was straight forward. She was in the neonatal ward, after 2 surgeries and 9 weeks she was home… and has been perfectly healthy ever since x
All I heard was it’s best to save the umbilical cord just in case they have issues with their bowel later
But apparently that’s uncommon and most cases the baby will be just fine
Do not be afraid! My son was born with Gastroschisis. He is now a very normal 10yr old. The beginning did frighten me and he had surgery the 1st week of birth.
I had it. At most it affects the chance of your child being able to have children if it’s a girl. It will mess with her menses cycle. Those are the biggest issues I’ve had.
My two year old has gastroschisis, If the OP would like to message me you are more than welcome to!
Ashleigh Bennett, you have experience here.
Laura Feldman maybe u can help??
Sammie Nicole Newman didn’t piper have this ?
My son had vanishing gastroschisis (his closed before birth and cut off blood supply) and now has Short Bowel Syndrome because he lost a substantial amount of intestine. There is an excellent organization that provides a ton of support/can answer questions/etc that I will try to tag here - Avery Angels - and if OP has any questions or wants to talk please feel free to pm me!
My niece was born with it. Her intestines were on the outside of her body. My sister was able to have a vaginal delivery. The baby had her first surgery that night. They got most of the intestines inside and waited a couple of days to do the rest. She was in the NICU for about 6 weeks. Then a couple of months later she had another surgery to reconstruct a belly button. But now she is a thriving 5 year old little girl!
I was born 45yrs ago with this. I stayed in the hospital for 2 mths. I have had no troubles. Normal life. I’ve had 3 children vaginally with no troubles. Just giving people a heads up on how normal my life was. My parents were worried about me also. Especially when i got pregnant but everything was fine. I hope everyones child born with this is doing well.
Not me but a friend of mine, her baby was born with gastroschisis and his intestines were outside of his body and he had a hole in is stomach. He was born premature and had to have surgeries done and was in the hospital for some time, he is now a happy wonderful crazy baby and has healthy as can be.
I had vaginal delivery still so it depends on you ,baby and hospital/surgeon…x
Hey hun my first born had it feel.free to pm me I will answer as best I can he is now 10 x
My daughter, now 27 was born with gastroschisis. In our case her bowels were twisted and she lost quite a bit of bowel at birth. C-sec due to the gastroschisis. My water broke at 33 weeks.
They should be able to tell you how serious and if they say it’s really bad, get a second opinion. They told my sister to terminate her pregnancy and she got a second opinion and now has a VERY healthy 16 year old!
My son was born with it, via c-section. 29 days in the nicu, 3 surgeries since birth. He is now 12 and hasn’t had an issues for about 10 years now.
Surgery on baby following cessarian delivery is likely.
Vanessa Hawks Tip Shive
If you would like you can message me and i can tell you what im going through. Im 33 weeks pregnant with a gastro baby.